National policy for rare diseases finalized: Ashwini Kumar Choubey
National policy for rare diseases finalized: Ashwini Kumar Choubey
New Delhi: A draft ‘National Policy for Rare Diseases’ was finalized, Union Minister Ashwini Kumar Choubey, on Friday informed Parliament.
The MoS Health, in his written reply to a question asked in Lok Sabha, said “the draft has been placed on the website of the Ministry of Health and Family Welfare with a view to elicit comments and views of stakeholders, including the States and Union Territories and the general public by February 15.
The draft policy provides for lowering the incidence of rare diseases based on an integrated preventive strategy encompassing awareness generation and screening programmes and, within the constraints on resources and competing health care priorities, enable access to affordable health care to patients of rare diseases which are amenable to one-time treatment.
Ashwini Kumar Choubey informed the House that number of persons suffering from diseases considered rare globally, was lacking in India and also there was limited data available on rare diseases. (IANS)